A Community Survey!

Lacuna Loft logo

We are reaching out to ask your opinion about a potential change we’re considering for Lacuna Loft. For those who may not know, “Lacuna” is defined as a blank space, an interval, or a gap…what we interpret as a hiatus of sorts. And “Loft” just seemed like a cool place to hang out. Our founder, Mallory, wanted Lacuna Loft to be a safe place where one could come and recover while learning to thrive. Where someone would want to stay a bit, hang out, and learn to live vibrantly during their hiatus.

While we love what this stands for, there have been challenges with the name. People often confuse “Lacuna” with the city name “Laguna” and believe that the organization is a physical place or retreat (“loft”). There is also some confusion when people search for “Lacuna Loft” online as there is a real estate company in Chicago named “Lacuna Lofts.” Issues like this add a level of complication by creating the need to correct, adjust, and explain the name, rather than focus on the support Lacuna Loft provides.

That said, we are considering a name change – a rebrand – that will reinforce our purpose and strengthen our ability to grow and support the community. We would not exist today if it was not for you and your involvement with us. Before we do anything, we want to know what you think!

Please take a few minutes to complete this survey to help us learn more about your experience with Lacuna Loft and your opinions and how we can evolve in a way that will continue to provide meaningful support to you.

Your responses are voluntary and will be confidential. Responses will not be identified by individual. All responses will be compiled together and analyzed as a group. If you would like to take the survey, please do so by August 15th.

 

 

Become An Empowered Survivor Or Advocate At A Triage Cancer Conference!

triage cancer conferences

Lacuna Loft is happy to be a sponsor of the Triage Cancer Conference series! The Triage Cancer Conferences provide individuals diagnosed with cancer, caregivers, advocates, and oncology healthcare professionals, with valuable information about understanding your health insurance options, navigating employment issues, managing finances, and more. Register for FREE here!  2019 Conferences will be in Chicago, IL, Chapel Hill, NC, & Houston, TX – travel grants are available!

Who should attend?

Individuals diagnosed with cancer, caregivers, health care professionals, & advocates will learn about:
– Understanding health insurance, picking a health insurance plan, and appealing denials
– Accessing clinical trials
– How to work through treatment or take time off
– Applying for disability insurance
– Estate planning and other important documents
– Managing medical bills, finances, and getting financial help
– Becoming an empowered patient and advocate
– Dealing with how to grow after trauma

Become an empowered survivor or advocate today by attending a Triage Cancer Conference!

Join the Next How to Turn Your Story Into Advocacy Workshop!

microphone with colorful backdrop

In a brand new, 90 minute, online workshop at Lacuna Loft, we’ll delve into how you can turn your young adult cancer story into change.  Advocacy comes in many different shapes and sizes so we’ll talk about what it might mean to you and how to go about shaping your own narrative into the change you want to see around you.  The workshop will be interactive and equip you with the skills you need to turn your story into advocacy.

Who: young adult cancer patients, survivors, and caregivers.

When: Wednesday, May 29th. 4-5:30 pm PT / 6-7:30 pm CT / 7-8:30 pm ET

How does it work? When you sign up for the workshop, you’ll get a confirmation from the system that you’ve been confirmed into the workshop. Then a few days before the workshop occurs, you’ll get an email from Lacuna Loft explaining how to join the video chat. ***You’ll need the link that we’ll provide you, a headset with a microphone, and a webcam.*** [ The webcam is very important. The workshop will be interactive so the other participants need to be able to see your face! ]

If you’ve already taken part in this particular workshop, this month’s event isn’t for you. But! We’ll be figuring out a follow up to the workshop in the coming months and will let you know when that is announced.

Brand New Advocacy Program!

microphone with colorful backdrop

In a brand new, 90 minute, online workshop at Lacuna Loft, we’ll delve into how you can turn your young adult cancer story into advocacy. Advocacy comes in many different shapes and sizes so we’ll talk about what it might mean to you and how to go about shaping your own narrative into the change you want to see around you. The workshop will be interactive and equip you with the skills you need to turn your story into advocacy.

Who: young adult cancer patients, survivors, and caregivers.

When: Tuesday, April 30th @ 5 pm PT / 7 pm CT / 8 pm ET.

How does it work? When you sign up for the workshop, you’ll get a confirmation from the system that you’ve been confirmed into the workshop. Then a few days before the workshop occurs, you’ll get an email from Lacuna Loft explaining how to join the video chat. ***You’ll need the link that we’ll provide you, a headset with a microphone, and a webcam.*** [ The webcam is very important. The workshop will be interactive so the other participants need to be able to see your face! ]

Where You Can Find Lacuna Loft In 2018

lacuna loft in person

This weekend I’m in Orlando (again, ha!) for the Young Survival Coalition Summit!  If you’re at the event, stop by our table in the exhibit hall to say hello!

I’ll be instagramming my way around town so keep in touch!  Lacuna Loft is all about bringing the young adult cancer community of patients, survivors, and caregivers together.  Sometimes we do that digitally and every once in a while, we get to do it in person too!  We’ll have some great info at our booth and a giveaway!  And we’ll be other places this year too!  If you’re at CancerCon in Denver, the ONS Congress in Washington DC, or ASCO  in Chicago, come and find Lacuna Loft!  We would absolutely love to meet you in person!!!