Book Club: Everything Changes, Chapter 3

young adult cancer book club

Welcome to the comments and discussion of Chapter 3: Single of the book, Everything Changes: The Insider’s Guide to Cancer in Your 20s and 30s!  Catch up on Chapter 1: Ramenonmics and Chapter 2: When G-d Things Happen to Sick People.

Let’s get started!  Chapter 3!

Carly:

A few things really stuck out to me in this chapter…

Memories

Post C world, there are some things you just forget about. It’s hard to remember all your feelings and experiences when healthy, let alone while being sick. Many things can jog your memory – a place, person, conversation, perhaps even a smell.

A few weeks back, I had a MRI for some lower back pain and when I was getting scanned (holding still, trying not to move or breathe too hard – I didn’t want to be in there any longer than I had to, even with a towel over my face), my body was numb and the memories came back quickly. It left a pit in my stomach. I couldn’t get out fast enough. When I walked through the double doors and saw my mom, it was a huge sigh of relief and comfort.

Side note: scanxiety is a real thing. Here are some tips on how to cope from Stupid Cancer.

“Being strong is not just about being inspirational or having your shit together. It’s about being able to freak out, too, so long as you don’t get stuck there.”

It is sometimes weird to hear others call you brave or strong for having had C. I didn’t feel strong when crying to my parents or not being able to hold my shit together before an appointment with my oncologist. I didn’t feel inspirational when I couldn’t look at my siblings without breaking down.

But as Wafa’a said, you can’t get stuck there. You have to keep focused, fight, talk it out (to whoever that might be), scream, cry, take a walk. Do whatever is needed to get out of the rut. Learning how to not get stuck while going through C will pay off later on.

“Cancer has made me so real. I feel like I’m so raw, there’s no time for bullshit.”

No time for BS. C taught me that. Say what you mean, mean what you say. Don’t hold back.

Side note: it’s good to remember this with strangers. As you can’t judge a book by its cover, you don’t know why people are raw. Appreciate and embrace it.

Mallory:

One of my favorite aspects of this book is how wonderfully the personal dialogues are mixed into each chapter along with a great resource section.  This chapter had great resources focused on dating, cancer sex ed, body image, and relationships.  Sex, dating, intimacy…these are all charged topics among young adults anyway, without cancer being a part of the equation!  “Don’t feel like a freak” as the author wonderfully puts it, be nice to yourself, and ask questions!  If your doctor doesn’t bring up a specific dating or sex topic but you have questions, ask them!  You are never going to shock them with something you want to know more about.

Thanks for joining us for our Chapter 3: Single of Everything Changes: The Insider’s Guide to Cancer in Your 20s and 30s!  Join in next Monday for Chapter 4: Human Spectacles.

If you’re just joining us, here are some logistics:

We will talk about a chapter each Monday until the book is done.  Then, we’ll use one more Monday to talk about general feelings from the book and anything else you’d like to discuss.  Join in, in the comments every week!  Also, there will probably be spoilers.  Read along with us!

How are you enjoying our young adult cancer book club?

Let’s Talk About Sex Baby!

sex during cancer

Geraldine is a lovely lady. In her 60’s. Well spoken. Wise. She’s one of the Breast Care Nurses who’s called me in for a little chat and a check up.

“Now I need to ask you Lara. Do you have a partner?”

“No. (Dramatic pause) I have a Lover.”

I said this purely in the hope of shocking Geraldine and to make her gasp or at least squirm in her chair. Course I don’t have a bloody lover! Well I sort of do – but I don’t think once a month counts. Right?

Geraldine doesn’t bat an eyelid. Doesn’t even flinch a millimetre.

Damn it.

Geraldine 1. Lara 0.

“You need to have regular intercourse throughout chemotherapy to keep everything in working order and the juices flowing so to speak. I recommend you get a vibrator.”

I think I’m gonna vom. Now I’m the one squirming in my chair.

Geraldine 2. Lara 0.

I can’t think of anything more revolting. A cold, clammy, glittery dildo that stinks of rubber and has a tiny pink rabbit having an epileptic fit attached to the side. How thoroughly sexy. I rather use it to stir my custard thanks. But if you insist Geraldine. I mean so far the NHS have come up trumps. A free wig. A complementary silk Hermes scarf designed by Stella McCartney. So why not give out free quivering wangers to all cancer patients? Or even better, free sessions with hunky men who are trained sexual ‘therapists.’ Oh and on top of that, throw in a couple of Merkins, seeing as chemo makes ALL of the hair on your body fall out if you know what I mean. Thank you please.

After my heart to heart with Geraldine I text my ‘Lover.’

‘I’ve just been to see my nurse and she says I need to have LOADS of sex during chemo to keep everything in working order. THIS IS A MATTER OF LIFE AND DEATH! You would be saving my life x’

No pressure or anything.

A few minutes later I get a reply.

‘Happy to oblige! x’

Being a cancer patient sometimes does have it’s perks.

This post first appeared here.

Have You Heard Of Chemo Dates?

chemo dates

Having young adult cancer can definitely put a crimp in your dating life.  If you thought dating as a young adult was hard, add in loss of hair, other body changes, fatigue, and everything else cancer brings into the mix and you’ve got an emotionally complicated situation.  Everyone deals with this in a different way.  I’ve talked with survivors who seemed totally unphased by the whole ordeal, survivors who shut themselves away until they felt more like themselves and more ready to handle the world, and many options in between.

Have you heard of chemo dates?  Diana Mendoza, a breast cancer survivor, explains that it’s “when two people who have cancer, book their chemo sessions on the same day and then go out to dinner or do something fun afterwards.”  Diana used these chemo dates between herself and another young cancer survivor as a coping mechanism during chemo.  She says, “these dates allowed me to believe I was still beautiful despite my physical and emotional scars. Cancer had already taken so much from me. I wasn’t going to allow cancer to silence that coquettish personality I have.”

Cancer takes so much, forcefully defines so much, and hinders so much.  Whatever you need to take back control over a piece of your being, do it!

Would you try chemo dates?  Did you use another tactic to regain control over your life?

If you’d like to read more of Diana’s writing, check out her blog.