My Name Is Steve And I Am A Drug Addict

Elephants and Tea is the fabulous, young adult cancer magazine on the scene and they have been rocking awesome content since they launched earlier this year.  This article, by Steve Giallourakis, is no different.  Steve talks candidly about his cancer experience and his drug addiction.

What is your strongest memory? I don’t mean your favorite memory. I mean your strongest. The type of memory that creeps to the front of your mind when you’re alone. The type when it’s quiet and you feel as if you can hear the actual memory trying to get loose and be heard.

For me it was a day that I had 5mg (milligrams) of morphine pushed straight into my heart (Editor’s Note: The morphine injected into Steven’s body was through his mediport in order to rapidly relieve him of severe pain). I don’t recall anything other then how it made me feel: a sensation that every cell in my body was feeling pure ecstasy. That is all I remember. This is my strongest memory.

This is what crawls back into my mind when it’s quiet. It is my memory that I feel scratching at the inside of my head begging to be remembered. This memory has affected me more than I would have ever cared to admit, until now.

My name is Steven Giallourakis and I am a drug addict.

You can read the rest of the article here.

A Letter To Someone Who Believed In You

Lacuna Loft’s Journaling program sends a journal prompt directly to your inbox.  Participants are encouraged to write for a specific amount of time (usually between 7-12 minutes) and are always invited to submit their writing for publication here.  This piece was written by Ashlinn in response to the prompt: Write a letter to someone who believed in you, even when you didn’t believe in yourself. Read the letter out loud to yourself when you’re done. How can you be kinder to your future self in a similar fashion?

My dearest nana,

You have welcomed me into your home and into your life during some of my most fragile moments. You have never, ever once shut the door on me, or put me down in ways where I could no longer get the strength to come back up. You have always believed in me and invested so much love and care into our relationship. I am so blessed to have a female role model like you after surviving the tragedy of losing my mother, and staring death in the face for the second time. You are a rival of the angels, for not even the most blessed have a heart as pure as yours. You have a servant’s soul and your will to do good exceeds that of anyone I have ever encountered. You are a guide to me and many and I consider myself lucky to call you my nana. I love you so much for your constant care and attention. For picking me up when I am down and reminding me consistently of all there is to be grateful for. You are a legend in the legacy you lead and how you show kindness and compassion to others. You are truly a shining example of what good is, and what good can be. You are my hero for so many reasons. And I wish to share this precious time we have together making happy memories. As much as you help me through the difficult, it is the fun in you I wish to live on inside me as your granddaughter.

I love you infinitely,

Ashlinn

How would you have responded to this same prompt?  Can you connect with how Ashlinn responded?  If you’d like to sign up for this program, please go here.

30 Truths

water rippling

Lacuna Loft’s Journaling program sends a journal prompt directly to your inbox.  Participants are encouraged to write for a specific amount of time (usually between 7-12 minutes) and are always invited to submit their writing for publication here.  This piece was written by Ashlinn in response to the prompt: Write a list of facts about yourself, listing the number of things based on your age. (ex. 30 years, 30 things). Now reflect on what you wrote. What trends do you see? 

30 truths about Ashlinn
1. I am as honest as my guilt makes me
2. I am easily influenced by media or opinions of people I admire
3. There are not many reasonable pleasures I forbid myself
4. I am very impulsive
5. I have a commitment phobia about some things
6. When I am angry I can be really really really mean
7. I am otherwise very approachable and friendly
8. I feel for the underdog, I want them to know unconditional love
9. I can be the most patient
10. I can be the least patient
11. I have very high standards of who I allow in my life
12. I am very nostalgic about damn near everything
13. I cry a lot
14. I have a dysfunctional relationship with food, prescription drugs and alcohol
15. Most of my family members are addicts
16. I can and tend to be very clingy and codependent
17. I have never ultimately turned anyone away from my life
18. There is little you can do for me to not forgive you
19. I can be irresponsible with money
20. I can be alone for right now, but I fear dying alone
21. I’m scared I’ll be a bad mother
22. I’m scared I won’t be a mother at all
23. I worry I will never forgive my late mother
24. I worry my potential children will never forgive me
25. I don’t know if I believe in God
26. I definitely believe there are immediate and latent meanings for everything in our lives, we have a higher power
27. I believe we are reincarnated many times in one life span
28. Im a hopeless romantic, but also a cynical non-believer that true love will ever happen to me
29. I worry of being so self deprecating I will come off unlikeable
30. I want desperately to be a successful writer

*Trends: I have trouble following through, but I will get most things done provided I give myself the time to do it. A lot of facts about me are fear based or wanting to be accepted. I did not lose any physical or psychological traits. Most of my facts are behaviour-related.

How would you have responded to this same prompt?  Can you connect with how Ashlinn responded?  If you’d like to sign up for this program, please go here.

Speaker Series Talk: Creating A Realistic Academic Plan

college graduates throwing hats

Our 7th Speaker Series Talk is now live!  Watch Michele Rosenthal talk about Creating A Realistic Academic Plan after Young Adult Cancer.  She is a higher education administrator with significant experience in higher education, serves as a volunteer College and Cancer Coach, and supports many Adolescent and Young Adult (AYA) Cancer programs.  Michele has also very generously offered her volunteer time to you so if you have a question after watching the talk please feel free to get in touch with her at michelerosenthal@verizon.net.

More about her talk: A cancer diagnosis can come as a surprise at any time but I believe that this is especially true during a life milestone like college. It is absolutely possible to navigate the higher education landscape while in treatment and recovery.

Psst…want to submit a topic for a future Speaker Series?  You can do so here!

Join Us For A Night To Remember

astronauts dancing

Join us at the Masquerade on the Moon Gala! Happening only once a year, attend an intimate evening supporting Lacuna Loft and raising funds to support programs for young adult cancer survivors throughout the year!  Enjoy cocktails and hor d’oeuvres while partaking in a Silent Auction, a collaborative art experience, and more! Meet great people and have a wonderful evening of frivolity!  The early bird pricing is only available for another few days so now is the time to grab your tickets and swag!

If you’re not able to join us in person, we have some great limited-edition event tees you can purchase for…you guessed it…a limited time!  (Plus, snag last year’s extras at a reduced price!)  Every dollar and cent goes directly to programs for young adult cancer patients, survivors, and caregivers.

Where: 1821 W. Hubbard Street Suite 307 Chicago, IL 60622

When: Saturday, November 2, 2019 from 6-9 pm

Who: You!

Attire: Semi-Formal

We can’t wait to see you in Chicago!

Interested in sponsoring a part of the evening? Please contact mallory@lacunaloft.org for more information!

There’s Still Time To Join Us At Thrivers Game Day!

soccer field

Lacuna Loft has partnered with Epic Experience to bring you a Thrivers Game Day in the San Francisco Bay Area!  There’s still time to register and join us on Sunday, September 15th for a free day of fun, games, and more with other cancer patients, survivors, and caregivers who totally understand what you’ve been through.  Play over 5 different games with prizes and everything in a relaxed environment.  You’ll also get a chance to meet our newest employee, Aerial, along with the great folks over at Epic Experience!

Learn more and register here!

A big thank you to our partners!  Seattle Genetics, Hopelab, and Stanford Adolescent and Young Adult Cancer Program!

Join Us At Thrivers Game Day

Lacuna Loft has partnered with Epic Experience to bring you a Thrivers Game Day in the San Francisco Bay Area!  Join us on Sunday, September 15th for a free day of fun, games, and more with other cancer patients and survivors who totally understand what you’ve been through.  Play over 5 different games with prizes and everything in a relaxed environment.  You’ll also get a chance to meet our newest employee, Aerial, along with the great folks over at Epic Experience!

Learn more and register here!

Got A Question About Sex Or Intimacy After Young Adult Cancer?

Have you ever found yourself wanting to ask your doctor a more *cough* intimate question but then chicken out last minute?  Goodness gracious, I know I have.  Whether it was about an intimate moment going a different way than I’d planned or a sensitive area that just didn’t feel the way it used to before young adult cancer, sometimes it’s hard to work up the courage to ask.

Now you can anonymously ask your question to Dr. Anne Katz, our very own Awkward Auntie!  She’s a certified sexuality counselor and nurse who has written a couple of books about young adults and cancer* – and all the things that happen to your body, relationships, and sex during and after treatment.  She will be answering any and all questions that you send to AwkwardAuntie@lacunaloft.org or that you submit in the form below. You don’t have to give your name or other identifying information – but it might be helpful for her to know how you identify yourself by gender, your age and what kind of cancer and treatment you had.

YOU CAN ASK HER ANYTHING…. Don’t hold back!  Your questions will be answered periodically and posted here, on our Awkward Auntie page.

Send your questions to AwkwardAuntie@lacunaloft.org or submit them anonymously in the form below and watch this space for the answers.

(Lacuna Loft considers anyone diagnosed with cancer, at any stage of the experience, to be a survivor!)

*This Should Not Be Happening: Young Adults with Cancer

It’s A Troubling World

woman in front of brick wall

This world is troubling on so many levels. I can typically handle one thing at a time but not a total shitstorm within two days. I will go ahead and warn this piece will talk about race in relation to cancer.

Believe it or not, race plays a part in the cancer experience. I’ve dealt with many nurses, staff at cancer support communities and fellow warriors in online support groups who automatically assume since I’m black that I must have triple negative breast cancer. They have sometimes talked down to me.

No, this is not my imagination. This is not me being overly sensitive.

I blogged about this particular incident when I first started my blog in November 2017. It’s worth repeating. Some will innately get the insult and frustration. Others will not see why it was a big deal. All I can do is speak my truth.

It was almost a month after I started chemo in October 2015. I decided I needed help processing what was happening. I’ve always been a big supporter of therapy and support groups. I’m a talker and like to talk things out. At that time, I didn’t know any other 39-year old’s going through this. I needed support.

I went to the Cancer Support Community in Atlanta, GA. In order to join a group, there is an intake session with one of the staff members. I had spoken with her on the phone and was really looking forward to meeting her. I was already fatigued, nauseous and had worked a full day by the time I arrived. I was expecting to feel relaxed and heard.

The woman, who was white, gave me paperwork to fill out. Once done, I handed it to her, and she reviewed. This is where my frustration begins.

She asked, “Are you sure you’re not triple negative?” I was puzzled by the question. I knew what my diagnosis was, and it was stage IIA invasive lobular breast cancer. Maybe she couldn’t read my writing, even though my writing is very neat and specific.

She asked again, “I just want to double check. Are you sure you’re not triple negative?”

This time I was annoyed and responded back sharply, “No, I wrote my diagnosis. Why are you questioning my answer?”

She said, “Well, most African American women who get breast cancer are triple negative. It’s very prevalent in your ethnic group.”

Now, her questions would’ve have been appropriate if I didn’t know my diagnosis or specifically asked about what type (s) of cancers are prevalent in the black community.

Only, I specifically wrote my diagnosis and verbally told her what I had, yet she still questioned me like I didn’t have a clue of what I was talking about.

It was that moment I realized she didn’t see me as a cancer patient. She saw me as a BLACK cancer patient. Understand the distinction?

Every question from that point was about race. I was there to talk about cancer and not the black experience. I left shortly after that exchange.

Cancer does not discriminate, so why was she?

Let’s fast forward to today.

Many cancer patients, whether in active or post treatment, spend much of their time going to the pharmacy to pick up medication. This pharmacy doesn’t have a drive thru. I was at Target. I needed to pick up my refill of the arthritis medicine. Yes, I have arthritis in my knees and hands. That’s a story for another day.

Though I was only there to pick up my medication, I got a cart to lean on since my fibromyalgia pain is a 12 today. There was a line and no place to sit down.

There was a white mother and her young son in front of me acting up.

She said, “See this BLACK woman? If you don’t hush, she’s going to hit you with her cart.” The kid starts crying. I’m speechless. I saw first-hand how racism is taught.

Now that little boy will associate black/brown women as harmful, cruel and punishing.

I was paralyzed and slowly backed away and went to another part of the store for a bit before circling back to get my meds. Keep in mind, there was a white woman behind me who witnessed this whole thing. She was conveniently looking down at her cart, not wanting to get involved.

I’ve experienced lots of racism but never in front of an impressionable child where a mother is saying because of my skin color that I would hurt her child.

I’ve even had the same thing said to me at a different pharmacy but that white woman said, “See THIS woman? If you don’t be quiet, she’s going to hit you with her cart.” That happened earlier this year.

What is it about threatening kids with carts?

I did say something in that instance, and she did a double take when I said it was not okay to say that.

This time was different because this white woman specifically mentioned my skin color. That’s why I felt paralyzed.

I posted this incident on my social media this afternoon. I received many comments of my friends, many white, saying they would’ve stuck up for me and said something to that racist woman. If I were a white woman, I think I would’ve said something.

As a woman of color, I knew to keep my mouth shut and walk away. There is no reasoning with people who have that mindset of hate.

Until next time,

Warrior Megsie

Megan-Claire Chase is a three-year breast cancer survivor in Atlanta, GA. She is a marketing project manager by day. In her spare time, she writes a blog called Life On The Cancer Train at www.warriormegsie.com and is a published cancer blogger for Lacuna Loft, IHadCancer.com, CancerBro, Humor Beats Cancer, GRYT Health, WILDFIRE Magazine and Rethink Breast Cancer just to name a few. One of her biggest achievements in 2019 was co-presenting an abstract on AYA perspectives on fertility preservation conversations with healthcare providers at the American Psychosocial Oncology Society (APOS) conference in Atlanta. She also has cat named Nathan Edgar who is her pride and joy.

This piece was first published at WarriorMegsie.com.

I Look At The Ground Now

Peanuts cartoon strip

I look at the ground now.
I don’t dare lift my head too high.
There are cracks in the sidewalk,
Precariously placed rocks,
And gnarly roots waiting patiently
To trip me up.
I don’t want to be caught off guard.
The truth scrapes up my knees.
It’s cold, and it’s hard.

I look at the ground now.
I put all my weight
In this present moment.
I try to own it –
The place where my body
Connects to the earth.
I count out my footprints
Do they measure my worth?

I look at the ground
In case there isn’t a horizon.
I don’t want to know
That all my stars have fallen.
I don’t want to plan for a future
That might never be here.
I’ll just keep moving forward
Until the ground disappears.

I look at the ground
So I won’t stray from the path.
I know where I’m going,
And there is safety in that.

I look at the ground,
And it is broken and rough.
But I am here.
I am now.
Isn’t that enough?

– Laura P.

How would you respond to the writing prompt, of the Peanuts comic strip?

This writing comes directly from one of our participants in our Unspoken Ink Creative Writing Group for young adult cancer survivors.  The participants met for 2 hours each week, for 8 weeks during our Spring 2019 session.  This writing has not been edited since its original creation, showing the wonderfully raw and powerful prose coming from the courageous writing group participants each week.  If you’d like to sign up for future sessions, please email info@lacunaloft.org or sign up on our interest form.