Behind the Scenes: Where You Can Meet Lacuna Loft In Person This Year

cancer advocacy

Here at Lacuna Loft, we are all about the behind the scenes, nitty-gritty of running an organization. When I started Lacuna Loft, I relied on some very communicative and helpful small business owners to help guide me…along with a load of library books!  In the Behind the Scenes series we’ll talk about the various stages of the development of Lacuna Loft and some of the lessons we’ve learned along the way. You’ll hear often from me, the Founder and CEO of Lacuna Loft, as well as from our Design Guru, board members, contributors, and more!

Today we’ll let you know where you can meet Lacuna Loft in person this year!

If you’ve missed other posts in our Behind the Scenes series, check out a day in the life of Lacuna Loft’s founderLacuna Loft’s First Daysan FAQ with our founder (me!), and Lacuna Loft’s Board of Directors.

Every year, Lacuna Loft travels to a number of conferences and events to interface with young adult cancer patients, survivors, and caregivers, as well as the healthcare providers who care for these young adults.  This year we are traveling to several (including one this weekend!) so we thought we’d let you know where you might be able to meet a member of the Lacuna Loft team in person!

March 10 – 11, 2017 – Young Survival Coalition Summit in Oakland, CA.  This conference is specific to young breast cancer survivors and their caregivers and this year, it is right in our backyard!  Oakland, CA is where Lacuna Loft’s office is!  If you’re a breast cancer survivor, this conference is a fabulous opportunity to meet other survivor sisters and to learn about some great resources while you’re at it.

April 27 – 29, 2017 – Stupid Cancer’s CancerCon in Denver, CO.  I am on the Steering Committee for this event again this year and it is not to be missed.  If you are looking to meet a bunch of other young adult cancer patients, survivors, and caregivers of every diagnosis under the sun, CancerCon is the place to go!

May 4 – 6, 2017 – Oncology Nursing Society’s Annual Conference in Denver, CO.  The ONS Congress is a new event for Lacuna Loft and I am really looking forward to it.  My mother was a member of the Oncology Nursing Society for a number of years and I’m anxious to meet as many of the wonderful and dedicated oncology nurses as possible.

June 2 – 6, 2017 – American Society of Clinical Oncology’s Annual Meeting in Chicago, IL.  ASCO is a new event for the Lacuna Loft team this year as well.  We have a booth space in the Patient Advocate area and are ready to meet and greet with as many healthcare providers as possible!

There are a few other events that we may attend this year but nothing else is set in stone.  Will you be at any of these conferences?  If so, one of our team would love to meet you!

Let us know if there is something in particular that you’d like shown as part of our Behind the Scenes series!

Behind the Scenes: Lacuna Loft’s Board Of Directors

board of directors

Here at Lacuna Loft, we are all about the behind the scenes, nitty-gritty of running an organization. When I started Lacuna Loft, I relied on some very communicative and helpful small business owners to help guide me…along with a load of library books!  In the Behind the Scenes series we’ll talk about the various stages of the development of Lacuna Loft and some of the lessons we’ve learned along the way. You’ll hear often from me, the Founder and CEO of Lacuna Loft, as well as from our Design Guru, board members, contributors, and more!

Today we’ll introduce you all to our Board of Directors working hard behind the scenes of Lacuna Loft!

If you’ve missed other posts in our Behind the Scenes series, check out a day in the life of Lacuna Loft’s founderLacuna Loft’s First Days, and an FAQ with our founder (me!).

For those of you unfamiliar with the nonprofit world, the Board of Directors is a group of individuals all nonprofits in the US need to have.  Board Members are responsible for making sure the organization’s activities remain in line with the organization’s goals and mission.  The Board of Directors at Lacuna Loft are very much a working board, which means that they not only help with the overall strategy of the organization but also in some of the day-to-day activities such as program development and fundraising.  These individuals are a huge asset to the organization and I’m not sure where I’d be without their hard word and dedication.  We are a small Board which means that everyone is very involved and decisions can be made quickly.  Having said that, we are looking to grow in the coming months.  If you’re interested in learning more about what being a Board Member looks like, email mallory@lacunaloft.org and we can chat!

Lacuna Loft is also very fortunate to have recently formed a Scientific + Medical Advisory Board.  We’ll let you meet them in a few weeks!  These wonderfully talented individuals will be helping with overall direction, impact, and evaluation of our programs.  For any young adult cancer survivors or caregivers out there, Lacuna Loft is currently forming a  YA Cancer Survivor + Caregiver Advisory Board.  If you’re interested in joining or learning more about this volunteer opportunity, please email mallory@lacunaloft.org and I can send you some more information!

Without further ado, please meet our wonderful Board of Directors!!!

Mal-picture-tiny-180-180Mallory Casperson – CEO + Founder, President, Board of Directors
Mallory has an MS and half a PhD in Aerospace Engineering from the University of Illinois at Urbana-Champaign. Several months after serving as a primary caregiver for her mother, during the final months of her life, Mallory was diagnosed with Hodgkin’s Lymphoma at the age of 24. Several years after her diagnosis, Mallory realized that her new survivorship needs didn’t fit into the work-life balance mold enforced by her graduate school research schedule. After leaving graduate school, Mallory was challenged to ‘do anything she wanted’ for an entire year. That year, Lacuna Loft was launched. She now manages operations, programs, and development at Lacuna Loft where online support programs and resources are provided to young adult cancer survivors in the comfort of their own homes. Mallory is an avid lover of animals, running, swimming, hiking, being outside, reading, crafting, and TV or movie marathons.

 

Patti-picture-tinyPatricia McDonald – Treasurer, Board of Directors
After first her young husband’s, and later her father’s difficult battles with cancer, Patti co-founded a cancer support center to encourage, educate, and empower patients and families experiencing cancer in their lives. She later went on to serve as Founding Executive Director for a second cancer wellness center in the Chicago area. Patti serves as a Lacuna Loft Board Member to do what she can to ensure young adults facing cancer have access to the innovative, age-appropriate, and impactful programs and resources they need to improve their quality of life and well-being – no matter how challenging the circumstances. With over 20 years of experience as a nonprofit leader and fundraising executive, Patti is currently working in advancement for higher education.

 

shelly-picture-tiny-180-180Shelly Whitsitt – Secretary, Board of Directors
Shelly works as a director of research and strategy at a qualitative market research and creative agency, Fusion Hill. She started her career in marketing at a start-up in South America and her first experience with qualitative research was with women farmers in India. At Fusion Hill, she enjoys turning rich, qualitative research into key insights that help clients achieve their business goals. Shelly has a BA in Psychology and Spanish and an MBA with a concentration in Marketing from the University of Illinois at Urbana-Champaign. Key experiences in her MBA program include a yearlong project on Product Innovation in Subsistence Marketplaces, and serving as CEO of a student-run 501(c)(3). Shelly enjoys spending time with family and friends, TV binging on Netflix, or getting cozy with a book. She loves traveling and exploring new cultures, trying new and different foods, and being active outdoors.

 

Sarah-Goodell-picture-tiny-180-180Sarah Goodell – Member, Board of Directors
Sarah is the newest member of the Lacuna Loft board and is thrilled to have the opportunity to contribute to this amazing organization. She is a Senior Analyst in Digital Communications and Corporate Social Responsibility at Mead Johnson Nutrition where she works on a variety of projects, from managing social media campaigns to coordinating CSR efforts. Prior to her work here, she was a Program Manager at Cancer and Careers, where she ran a number of their programs as well as coordinated social media and PR initiatives. During her years working in the cancer community she became very passionate about supporting survivors, particularly young adults, and helping them thrive after a diagnosis. Sarah is originally from Minneapolis but currently lives in Chicago, and is an avid rollerblader, yogi, and brunch enthusiast.

Let us know if there is something in particular that you’d like shown as part of our Behind the Scenes series!

Stand Up and Share Your Voice

young adult cancer stories

Each of you has a story to tell…something about what you’ve experienced that could directly help someone else facing young adult cancer.  The first conversation I had with another young adult cancer survivor was a powerful moment for me.  The next encounter was a blog post where I connected so fully to the author that I wanted to climb through my computer screen and give her a hug…for her to give me a hug.  These stories are powerful.  They have the ability to pull us out of isolation and to draw us closer together.  The young adult cancer community needs these moments, these connections, and these voices.

Your story matters.

To add continually to the stories we share, we need *YOU*!  Sit down, have a coffee with us, and share your voice!

New Year, New You!

young adult cancer stories

You can help someone, just like you, going through young adult cancer by sharing your story.  Our readers report that they feel more connected and less isolated after following our Young Adult Voices blog.  They are able to read through the courageous stories of our contributors and *know* that someone out there, understands so much about them.

Your story matters.

To add continually to the stories we share, we need *YOU*!  Sit down, have a coffee with us, and share your voice!

Have A Happy Holidays

Today is our last day of 2016 posting in the Young Adult Voices blog.  2016 has been a very exciting year for Lacuna Loft.  We launched a number of programs, we grew our participant base significantly, we spoke with a number of healthcare providers about the age-appropriate needs of young adult cancer survivors and caregivers, we had 2 different book clubs and 2 sessions of the unspoken ink: young adult cancer creative writing group and 2 creative workshops, many new contributors, and so much more.

2017 holds so much in store.  We’ll have a new creative workshop announced in January and the Young Adult Cancer Hangouts are starting.  We’re growing our programs, growing our support base, and growing our reach.  We are really excited for what is to come.  We’re excited to learn more of your stories, excited to meet more of you in our online programs, and excited to expand Lacuna Loft’s support programs to meet the needs of more and more young adult cancer survivors and caregivers.

From all of us, here at Lacuna Loft, have a very happy holidays.  Stay warm and dry and safe.  Remember that you are valued and that we will miss you until we’re back in January.

January Young Adult Cancer Hangouts Are Scheduled!

young adult cancer hangout

I am SUPER excited to announce that Lacuna Loft’s 7th program is officially launching in January!  The Young Adult Cancer (YAC) Hangout!  The YAC Hangout will bring together young adult cancer survivors and caregivers each month in an informal video hangout where you can chat about anything you’d like.  From the comfort of your own home, you can connect with other young adults who understand what it’s like to go through young adult cancer.  Talk about cancer, or don’t!  Whatever you want!

Until otherwise announced, the YAC Hangouts will occur on the 1st and 3rd Thursdays each month.  We’ll warn you ahead of time, on Lacuna Loft’s social channels (twitter, facebook, instagram) as well as by email if you sign up below.  If you’ve already signed up, then you’re already set!

In January, the YAC Hangouts will happen on…

Thursday, January 5th from 5:30 – 7:30 pm PST / 8:30 – 10:30 pm EST.

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Thursday, January 19th from 5:30 – 7:30 pm PST / 8:30 – 10:30 pm EST.

How does it work?  After you fill out the form below, you’re signed up for the YAC Hangouts!  These hangouts are informal and unmoderated.  There will be a Lacuna Loft volunteer always present as a guide for the hangout, but these video chats are not a support group and will *not* be led or facilitated by a healthcare provider.  If you need to talk with someone more qualified to handle any anxiety, side-effects, etc. please contact your physician.  Prior to your first YAC Hangout, you will receive a Lacuna Loft email address that you’ll use when attending.  You can use this same email address each time you attend a YAC Hangout.  The Hangouts have a “drop in” policy so no need to alert anyone if you can or cannot make it that week.  Each YAC Hangout is open to any young adult cancer survivor or caregiver who signs up and is available!

What will you need?  A computer (or a smart-phone or tablet), a headset with a microphone, and a webcam.

And, that’s it!  If you haven’t already, sign up below to receive your Lacuna Loft email address and attend our first YAC Hangout!

Send In A Design!

We are looking for an awesome design from you!  We have learned over our year and six months of being a nonprofit that you all, our wonderful readers, are creative, powerful, and courageous!  You have shared your stories with us, your energy, your wisdom, and we hope that we have so far served you well with our diverse and ever growing program base.  You are the most important part of Lacuna Loft.  You and your needs feed into our programs and our mission on a daily basis.  We want our next design to reflect you too!

Have some young adult cancer creative juices that you’d like to share with us?  Want your design to be featured by the next release of Lacuna Loft gear?

Submit your design by January 7 to info@lacunaloft.org and we’ll pick our favorite for our upcoming gear!  Just think of how cool your design would look on Lacuna Loft t-shirts, posters, hats, you name it!  I can’t wait to see what you all come up with!  We’ll share all of the designs (with links and credit given to each of the wonderful artists) on our website once the competition is over and we’ve chosen our winner.

Ready?  GO!

 

 

 

 

Some fine print:

By submitting artwork/design/logo (“the Work”) to Lacuna Loft (“the Organization”), you (“the Artist”) grant the Organization an exclusive, perpetual, royalty-free license to reproduce and distribute the Work including a license to all rights to the Work, which include, without limitation, the right to modify or create derivative works base on the Work.  The Artist agrees that all Work he or she submits to the Organization will be entirely his or her own and will not include any plagiarism or any work of third parties.  Notwithstanding the foregoing, nothing contained in this Agreement shall be construed to create a master/servant, employer/employee, or principal/agent relationship between the Organization and the Artist.

Join A Young Adult Cancer Hangout

young adult cancer hangout

We are very excited to welcome a new program to Lacuna Loft, the Young Adult Cancer (YAC) Hangout!  The YAC Hangout will bring together young adult cancer survivors and caregivers in an informal video hangout each month where you can chat about anything you’d like.  Whether you’re talking about cancer, or anything else under the sun, join together with other people who understand what it’s like to go through young adult cancer.

Sign up below and we’ll send you more details!

Tell Your Community About Lacuna Loft

Lacuna Loft

As we start nearing the end of 2016, Lacuna Loft would like to thank you for participating in our programs.

We hope you loved your experience!

Lacuna Loft exists to make programs and support available to you, wherever you are, whenever you want.  To make these programs available to every young adult cancer survivor and caregiver we need your help.  Use the hashtag, #JustLikeMe, to tell your communities what Lacuna Loft means to you.

Let your community know that you deserve age-appropriate support and connection to other young adult cancer survivors and caregivers who understand!  Encourage your community to join our Lacuna Loft Flight Crew, the amazing community of donors who directly supports young adults facing cancer, just like you!

You know, better than anyone, the consequences when one young adult is diagnosed with cancer every eight minutes.  Your future is changed in an instant.  Lacuna Loft offers connection to other young adult cancer survivors, access to emotional support that addresses your age-specific needs, and encouragement from other young adults who understand, all wrapped conveniently in a website, accessible 24/7, with all of our programs offered free of charge.

This is why we need your help.

Lacuna Loft is a community funded charity and financial support keeps our programs running.  Can you tell your community what Lacuna Loft means to you?  Partner with us, as we grow, making sure that no young adult cancer survivor or caregiver faces cancer alone.  Using the hashtag, #JustLikeMe, we emphasize how alike we all are, as young adult cancer survivors and caregivers.

Share on your social channels, let your community know that Lacuna Loft’s programs are important to young adult cancer survivors and caregivers!

Encourage them to donate to Lacuna Loft!

 

You can use some of our Shareable language!
Looking to donate to charity this holiday season? @LacunaLoft offers programs for #yacancer survivors, #JustLikeMe https://cactuscancer.wpengine.com/donateYour donation provides a community for #yacancer survivors, 24/7 @LacunaLoft #JustLikeMe https://cactuscancer.wpengine.com/donate

Your donation provides a community for #yacancer survivors, 24/7 @LacunaLoft #JustLikeMe https://cactuscancer.wpengine.com/donate

P.S.  Looking for some easy, shareable images?  Email info@lacunaloft.org and we can send you some!